Leah Edgar, a healthy and happy mom of a toddler.
On May 9th, 2021 Leah had her first Pfizer COVID Vaccine Dose. Her reactions to it started within 24 hours.
Here is her story:
My life and health forever changed on May 9th, 2021. Sadly I didn’t listen to my gut and let the pressures of my workplace, as an educator, get in the way of making the choice.
Immediately after receiving it I knew something was wrong, I started having visual disturbances. Later that evening a huge welt to appeared on my back. It was painful I went to the hospital and they could give me no explanation other than it was potentially shingles caused by the you know what. Following day I started having chest pains, palpitations, dizziness and vertigo. This went on for months, as well as having issues with my temperature, tolerating heat, having flares where my cheeks would burn hot as fire and related to be described as ongoing allergic reactions.
These reactions went on until I ended up in an episode of anaphylaxis after which point I then started having tremors, internal tremors and head pressure.
In and out of the hospital, having repeated fainting spells (loss of consciousness), the pain went to the right side of my face and right eye, and since then I’ve been progressively losing my vision in my right eye along with being in chronic severe pain in my face and eye 24/7.
At this point I have been diagnosed with POTS. I deal with chronic severe pain in my face and eye every waking moment, as well as vertigo. I’m literally going blind and they have no idea how. It has been totally debilitating and has changed my life course. I’ve had to change my plans as a young mother as I haven’t been able to function. All I would like is to receive proper medical treatment and for no one else to suffer like I have.
Immediately after receiving my dose, I felt out of body, I ignored this and drove home. Within 24hrs I had a large mass appear protruding out of my back. That’s when I went to the hospital the first time.
They found nothing and had no answers. This was the beginning of my nightmare. After this point three days post vaccine, I started having heart problems, palpitations, chest pain, dizziness, shortness of breath. I spent countless days in the hospital and they could not explain it beyond it being a reaction to the vaccine. I was diagnosed with tachycardia and high blood pressure was noted, which I never had before. I thought I couldn’t function at this point, but it only got worse.
By July, while still dealing with the cardiac issues, I started having flares where I would flush in the face and become weak. Shortly after this I started suffering from episodes of anaphylaxis. After my last most sever episode of anaphylaxis, I started having tremors in hospital. This is when the real worst nightmare began.
After this point I started having terrible Neurological symptoms: immense head and skull pressure, pain and weakness in the right side of my face, pain and weakness in my right eye, blurry and double vision, right side limb weakness, dizziness and vertigo.
I wasn’t able to do much of anything. After more dismissal at the hospital, they sent me home. The following day I started have fainting spells and ended up fainting in my front entrance. Headed to hospital once again and had to beg for any testing. They did a CT and it was clear so they sent me home once again.
Now I have been dealing with worsening neurological symptoms for the past 2.5 months. I continue to have fainting spells, the pain and weakness, as well as pressure in my head is totally debilitating and never stops. I now have neuropathy (tingling, burning and numbness) in my face (right side), and on my right side, hand, leg and foot. I’m waiting to see a neurologist still and it’s a 12 month wait.
I’m getting to a point where I can’t work and the treatment options that have been helpful to others are expensive and out of pocket. It’s so hard as a young mom of a little toddler to try and manage it all when even taking a walk is hard.
I once lived such a full life, a life of loving the outdoors, hiking, camping and enjoying going on adventures with my family, enjoying all my time with my beautiful daughter. I have a job that I love working with special needs students. Now I live in pain everyday. I just hope and pray that I can recover. Six months of suffering and it is truly scary.
I appreciate any help or suggestions. Thank you for following my story.
November 9, 2021 UPDATE: Hi everyone, I’ve been in and out of doctors visits and they have found that I have a condition called nystagmus (didn’t have this before), where my eyes move involuntarily. This is really just another symptom of a larger issue, but I’m glad someone saw something. I also have found out I’m borderline hypoglycemic, which again wasn’t the case previously. The nystagmus can explain some of my vision issues, but not all and not the excruciating pain and discomfort I have in my face and eye 24/7. Going to keep strong and hoping to find a good naturopath to work with. I’ve been trying some acupuncture as well, but my goal is to try IV therapy and HBOT. Thanks for all your support and kindness.
October 31, 2021 UPDATE: After two better days and then two day days of severe migraines… Today is totally awful. My vertigo and dizziness is insane and feels like the life has been sucked out of me. My eye is always off sadly. Just trying to rest. Had 10hrs of sleep and still feel like I haven’t slept in a month.
You can follow her journey HERE.